Discussing regulatory barriers at the Duchenne Breakthrough Research Fund Launch

Posted by Bex Johnson on November 21, 2012 · Leave a Comment 

On Saturday I was delighted to be asked to give a talk about the regulatory barriers in accessing medicines at the North West launch of the Duchenne Breakthrough Research Fund. At the launch Neil Bennett from our research team gave a really interesting presentation on the developments in potential treatments for Duchenne Muscular Dystrophy with … Continue reading →

Category Duchenne muscular dystrophy, NHS Commissioning Board, NHS reforms

New NHS Structures and Accessible Air travel…Westminster Investigates

Posted by Bex Johnson on November 8, 2012 · Leave a Comment 

Yesterday was a particularly exciting day in Parliament for the campaigns team and kicked off with the All Party Parliamentary Group for Muscular Dystrophy session. The meeting, which was chaired by Dave Anderson MP, involved a panel of experts form the NHS answering questions about new NHS structures which are due to come into place from … Continue reading →

Category Care Advisors, GP Commissioning, National neuromuscular work plan, NHS Commissioning Board, NHS reforms, Parliamentary activity, Trailblazers

Health Minister outlines ‘national standard’ of service provision

Posted by Jonathan Kingsley on June 15, 2012 · Leave a Comment 

Health Minister, Paul Burstow MP, yesterday outlined the impact of direct commissioning of services through the NHS Commissioning Board as part of the plans in the Health and Social Care Act. Mr Burstow, responding to a question tabled by Tom Blenkinsop MP on the delivery of specialised neuromuscular services under the NHS Commissioning Board, said: … Continue reading →

Category National neuromuscular work plan, NHS reforms, Parliamentary activity