Muscle Groups in action last week in the Thames Valley and Hampshire!

Two Muscle Group meetings were held in the South at the end of last week – with 35 people from across Hampshire joining together in Southampton on Friday, and 25 people from the Thames Valley region meeting in Reading on Saturday.

The Muscle Group meetings give people living with neuromuscular conditions, or a with a family member affected, the chance to come together and share advice and support in the fight against muscle disease, and to campaign for better services.

In Southampton, members of the group shared their experiences of diagnosis, and what tips they had for other people coming through the same difficult time. The meeting also heard from Trailblazers Project Manager, Bobby Ancil about the work of the young campaigners network – over 250 young people campaigning for greater inclusion in employment, education, tourism, transport and leisure.

In Reading the next day, families heard all the latest news about research into neuromuscular conditions from Dr Kristina Elvidge, Research Communications Officer at the Muscular Dystrophy Campaign – and quizzed Kristina about research updates for myotonic dystrophy, facioscapulohumeral muscular dystrophy, OPMD and Duchenne muscular dystrophy – find out more on the Research News page of the website. Fundraising activities from across the region were shared by Carol Tunstall, Volunteer Fundraising Manager at the Muscular Dystrophy Campaign – including the exciting new Come Dine With Us competition! Members also shared concerns about any potential changes to disability benefits and social care funding – and shared these concerns with local Councillor Tim Harris – who attended the meeting and is the local Conservative spokesman for Community Care and Health.

Both groups will be meeting again early next year – and new members are always welcome. To find out more get in touch on 020 7803 2865 or campaigns@muscular-dystrophy.org

Muscle Group meetings take place all over the country – find out what’s happening in your area here

Advertisements

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: