Impact of inadequate social care provision

Action Now!

The Muscular Dystrophy Campaign's Cost of Living with Muscle Disease report has wide-ranging recommendations to end disability poverty

Prime Minister David Cameron has taken a personal interest in the case of a Bristol mother, Riven Vincent, who asked social services to take her daughter, who has severe quadriplegic cerebral palsy and epilepsy, into care as they refused extra respite care and she could not cope.

The case, which has attracted widespread media attention, emphasises the often devastating consequences when local authorities fail to provide adequate social care provision.

Cases like this are becoming ever more frequent as a result of cuts to local councils’ budgets and ring-fencing of funding for respite care being taken away.

We recently reported how planned cuts by Norfolk County Council on the living standards of 100,000 people with disabilities.

The Muscular Dystrophy Campaign highlighted the cost of living with muscle disease in a report in November 2010, including the struggle of households to cover necessities and that the current benefits system is not covering the additional cost of living with a disability.

The proposed welfare reform by the Government has serious implications for social care for both children and adults. Many organisations, including the Muscular Dystrophy Campaign, are battling to stop the removal of the Mobility Component of the Disability Living Allowance.

Have you experienced difficulties in accessing respite care provision? Get in touch by email at campaigns@muscular-dystrophy.org

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