Extensive list of press coverage for our national patient survey

A crucial factor of the launch of our ‘State of the Nation’ patient survey report last week was securing press coverage across the country as we campaign for investment in specialised neuromuscular to fix the gaps in specialist care provision.

We have catalogued the tv, radio, print, online and trade coverage which we estimated reached over 5 million people:

TV:

BBC East Midlands – interview with Margot Keats from Derbyshire who has FSH, and the Muscular Dystrophy Campaign

ITV Central (East Midlands and West Midlands)- interview with Karen Bayliss from Birmingham who has FSH, and the Muscular Dystrophy Campaign

BBC Look North – interview with Mark Creswick, from Sheffield, whose 4 year-old son has Duchenne muscular dystrophy and the Muscular Dystrophy Campaign

Radio:

BBC Lancashire – Interview with Mike Brown from Bolton-le-Sands who has FSH and the Muscular Dystrophy Campaign. This was repeated in news bulletins throughout the day.

http://www.bbc.co.uk/programmes/p013lklj  (1:03)

BBC Radio Nottingham – Interview with Margaret Bowler from Nottingham who has myotonic dystrophy, and the Muscular Dystrophy Campaign. This was repeated in news bulletins throughout the day.

http://bbc.in/UFCy9w (2:18)

BBC Radio Sheffield – Interview with Mark Creswick from Sheffield, who has a son with Duchenne muscular dystophy, and the Muscular Dystrophy Campaign. This was repeated in news bulletins throughout Thursday 31st January and Friday 1st February.

http://bbc.in/Tf1RQe (1:23)

BBC Radio Surrey – Interview with James Goodwyn, from Alton in Hampshire who has two sons with Becker muscular dystrophy, and the Muscular Dystrophy Campaign. This was repeated in news bulletins throughout the day.

http://www.bbc.co.uk/programmes/p013bg88 (1:41)

BBC Radio Leicester – Interview with Vivek Gohil, from Leicester, who has Duchenne muscular dystrophy, and the Muscular Dystrophy Campaign. This was repeated in news bulletins throughout the day.

http://www.bbc.co.uk/programmes/p013gl61 (0.38)

BBC Radio Tees- Interview with Cath McNicol from Middlesbrough, who has SMA, and the Muscular Dystrophy Campaign. This was repeated in news bulletins throughout the day.

http://www.bbc.co.uk/programmes/p013x3ns  (0.10)

BBC Radio Merseyside- Interview with Joanne Ashton from Liverpool, who has a son with Duchenne muscular dystrophy, and the Muscular Dystrophy Campaign. This was repeated in news bulletins throughout the day.

http://www.bbc.co.uk/programmes/p013ygrv (1.26)

LBC Radio- Radio interview with the Muscular Dystrophy Campaign.

Free Radio – Interview with Jane Field from Droitwich, Worchester, who has a son with Duchenne muscular dystrophy. This was repeated in news bulletins throughout the day.

Radio Aire – Interview with Barbara Taylor from Winchester who has FSH. This was repeated in news bulletins throughout the day.

Magic Radio – Interview with Barbara Taylor from Winchester who has FSH. This was repeated in news bulletins throughout the day.

Regional Print:

York Press- Interview with Brian Deehan from Driffield, Humberside, who has a son with Becker muscular dystrophy

http://www.yorkpress.co.uk/news/10200591.Concern_over_muscular_dystrophy____misdiagnosis___/

Leicester Mercury – Interview with Sheila Hawkins from Leicester who has FSH.

http://www.thisisleicestershire.co.uk/Patients-like-Sheila-facing-gaps-care/story-18010556-detail/story.html

Blackpool Gazette – Interview with Dawn Fensom from Blackpool, who has a son with Duchenne muscular dystrophy

http://www.blackpoolgazette.co.uk/community/community-news/boost-for-muscle-wastage-patients-1-5378877

Birmingham Mail – Quote from Karen Bayliss from Birmingham who has FSH

Lancashire Telegraph- Quote from Muscular Dystrophy Campaign

Shropshire Star- Quote from Muscular Dystrophy Campaign

The Courier and Advertiser – ran the story

Coventry Telegraph – ran the story

The Scotsman – ran the story

The Scotsman- ‘Scottish perspective: Letters to the editor’ Jackie Baille MSP Chair of the Cross Party Group on Muscular Dystrophy in the Scottish Parliament, response to the previous article featured in The Scotsman ‘’Postcode lottery’ warning over care’ (31st January 2013)

http://www.scotsman.com/news/letters/specialist-care-1-2774925

In process – Driffield Advertiser – Interview with Brian Deehan from Driffield, Humberside who has a son with Becker muscular dystrophy

Online:

itv.com (central): Interview with Karen Bayliss from Birmingham who has FSH.

http://www.itv.com/news/central/2013-02-02/muscular-dystrophy-charity-calls-for-specialist-carers/

Commissioned articles with the following trade journals due over the coming weeks:

The Health Service Journal, the leading health service management and policy title, reaching an audience of healthcare leaders. Circulation: 15,565

1,200 by-line article with Prof. Katie Bushby

GP Magazine, the leading fortnightly magazine for UK doctors.Circulation: 37,911

700 by-line article with Dr. Stephen Meech

Nursing Standard, top weekly journal containing peer-reviewed articles and research news. Circulation: 58,296

By-line article with Specialist Nurse Cath Parry

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