Next PIP stop- Milton Keynes!

Last Friday I made the short journey north to Milton Keynes for the last of the South Central muscle group workshops.

I was joined by many familiar faces and some new faces, which is always nice. Again the focus of the workshop was the very imminent introduction of Personal Independence Payments (PIP) – the new disability benefit replacing Disability Living Allowance (DLA).

The group was very active with a number of pressing concerns being raised about the new benefit and how they will be affected by it. After holding three PIP workshops, I have become aware that there are specific concerns shared by the neuromuscular community. The most glaring concern revolves around the mobility component and the much stricter guidelines.

At Milton Keynes we talked about how best to overcome the stricter guidelines to ensure that people were getting access to the mobility component. The key to this, we determined, was to compartmentalise the activity of mobilising- effectively breaking down the activity into steps and how each individual’s condition affected them performing each of those steps.  

Everyone found the workshop helpful and all left feeling a little more confident that when they are contacted about migrating across to PIP, they will have the knowledge to fill out the forms.

PIP wasn’t the only agenda item with the infamous ‘bedroom tax’ proving a hot topic of conversation. I shared with the group how the Muscular Dystrophy Campaign is seeking legal advice on how best to challenge the government’s plans to cut housing benefits for families and individuals who have a spare bedroom.

On reflection it was a very productive workshop and I’m already looking forward to making the trip again when the sun is shining- hopefully!

If you would like to hear more about the Milton Keynes Muscle Group, or would like to find out about Personal Independence Payments (PIP), please contact me on 020 7803 4808 or by email at


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