The Equality Act and the Right to Local Care

Travelling long distances to receive care is something we know affects many patients with a neuromuscular condition. The costs associated with this are often large and not met by the benefits an individual may receive. At the Muscular Dystrophy Campaign, we continue to work hard to raise national standards of care, so that wherever you … Continue reading

30 miles makes all the difference: The unacceptable post code lottery of care.

Today I’ve been working on an advocacy case for a 34 year old man with Duchenne Muscular Dystrophy. Since coming out of hospital after his recent tracheotomy, his care needs have increased. However he has been told that the NHS will not fund care in his own home- instead forcing him to live in a … Continue reading

Minister confirms Government commitment to Access to Work

Following a meeting with the Muscular Dystrophy Campaign Baroness Thomas of Winchester tabled a question on the future of the Government’s funding, advice and support service Access to Work. Baroness Thomas, a Vice-President and Trustee of the Muscular Dystrophy Campaign and a keen parliamentary supporter of Trailblazers, asked Department for Work and Pensions Minister, Lord Freud, … Continue reading