Making breathing easier – a visit to Royal Brompton’s respiratory clinic

Yesterday afternoon I went to the Royal Brompton hospital to attend Anita Simonds’ respiratory clinic for children with neuromuscular conditions. Respiratory issues – such as recurrent chest infections – affect lots of people with neuromuscular conditions but are most common in children with more severe conditions such as Duchenne or Spinal Muscular Atrophy (SMA). These … Continue reading

Physiotherapists Conference proves a hit

Last Friday I made the short trip, albeit with arms full of MDC publications, to Tower Hill for the Association of Paediatric Chartered Physiotherapists conference. The two day conference was an opportunity to raise the profile of the charity and improve our links with a group of professionals that have a lot of involvement with … Continue reading

Disability Horizons hits the headlines!

Disability Horizons, an online lifestyle magazine for disabled people set up last year by Martyn Sibley and Srin Madipalli, made the headlines itself today when it was featured in an article in The Guardian newspaper. Martyn and Srin, who both have Spinal Muscular Atrophy (SMA), set up the magazine last year after deciding – when on … Continue reading