Reflecting on a positive All Party Group meeting

We have a guest blog from one of our supporters who attended the All Party Parliamentary Group for Muscular Dystrophy meeting yesterday morning. Paul Ronson, who has FSH muscular dystrophy has blogged his reflections on the meeting: “It was a real pleasure to attend such a positive meeting in the Houses of Parliament to discuss … Continue reading

The debate around newborn screening

Last month an article was published in the journal Nature, contributing to the ongoing debate around newborn screening for Duchenne muscular dystrophy. Anna Hatfield, a volunteer in our team, summarises the article in this post.  Last month, the journal Nature published an article on Twila Brase, an American campaigner against newborn screening, which raised a … Continue reading

Dave Anderson backs call for national newborn screening programme for Duchenne

Dave Anderson MP, Chair of the All Party Parliamentary Group for Muscular Dystrophy, in response to an article in The Times today, has backed the call for a national newborn screening programme for Duchenne muscular dystrophy. Professor Dame Kay Davies of the University of Oxford has said that a national screening programme for Duchenne must … Continue reading