Discussing regulatory barriers at the Duchenne Breakthrough Research Fund Launch

On Saturday I was delighted to be asked to give a talk about the regulatory barriers in accessing medicines at the North West launch of the Duchenne Breakthrough Research Fund. At the launch Neil Bennett from our research team gave a really interesting presentation on the developments in potential treatments for Duchenne Muscular Dystrophy with … Continue reading

New NHS Structures and Accessible Air travel…Westminster Investigates

Yesterday was a particularly exciting day in Parliament for the campaigns team and kicked off with the All Party Parliamentary Group for Muscular Dystrophy session. The meeting, which was chaired by Dave Anderson MP, involved a panel of experts form the NHS answering questions about new NHS structures which are due to come into place from … Continue reading

Fighting for better care across London

Last Monday Lisa and I, along with neuromuscular experts and NHS Commissioners from across London, attended a Steering Group meeting at NHS London.  The group was set up thanks to pressure from the charity, together with our Life President, Lord Walton of Detchant. DespiteLondonbeing home to some excellent specialist neuromuscular services, there is still only … Continue reading