Calling for improved access to specialist care in Scotland

Jackie Baillie MSP took the opportunity to back our calls for improved access to specialist neuromuscular care in a letter to the Scotsman this week following the newspaper’s coverage of the Muscular Dystrophy Campaign’s National Patient Survey launched last week. Jackie Baillie highlighted the Mackie Report into access to specialist neuromuscular care published by the … Continue reading

‘A Life Worth Living’ film – the Scotland Muscle Group screening

I was in Falkirk with Bobby from Trailblazers on Saturday for our latest Scotland Muscle Group meeting. It was great to see both new and familiar faces at the meeting at the Falkirk football stadium as we focused on independent living and watched the new film by Jon Hastie called ‘A Life Worth Living’, which … Continue reading

Parliamentary action in Northern Ireland and Scotland

Our parliamentary campaigning takes us to Northern Ireland and Scotland next week. Here’s a quick overview of the forthcoming action… On Tuesday we will be at the Northern Ireland Assembly for the next inquiry session of our All Party Group on Muscular Dystrophy, chaired by Conall McDevitt MLA. We will be focusing on the patient … Continue reading