Meeting with Welsh Health Minister secured

We tuned in online this afternoon to watch First Minister’s Questions in the Welsh Assembly this afternoon as Bethan Jenkins AM and Assembly Member colleagues called on the First Minister, Carwyn Jones AM, to state what action is being taken to improve neuromuscular services in Wales. Bethan Jenkins’ request for a meeting was agreed to … Continue reading

North Wales families call for urgent service improvements

People living with muscle disease in north Wales called for urgent improvements to neuromuscular services at the North Wales Conference in Wrexham on Friday 25 February. Addressing the conference were Wrexham AM, Lesley Griffiths, and Betsi Cadwaladr University Health Board Chief Executive, Mary Burrows. Responding to recommendations in the Cross Party Group on Muscular Dystrophy’s … Continue reading

New Care Advisors in Wales meet families at Cross Party Group session

Families, Assembly Members, health professionals and the Muscular Dystrophy Campaign welcomed the developments to neuromuscular services in Wales at yesterday evening’s Cross Party Group session. The Welsh Assembly’s Cross Party Group on Muscular Dystrophy, chaired by Dr Dai Lloyd AM and holding its first review follow-up session since the launch of the Thomas Report in … Continue reading