Me, Myself and PIP

Martin Hywood is 39 and has limb girdle muscular dystrophy. Here he shares his experience of his first muscle group meeting and his thoughts on Personal Independence Payments (PIP) – the new benefit replacing Disability Living Allowance (DLA). “I’ll start with a little introduction, although the above may well tell you quite a lot already. … Continue reading

Next PIP stop- Milton Keynes!

Last Friday I made the short journey north to Milton Keynes for the last of the South Central muscle group workshops. I was joined by many familiar faces and some new faces, which is always nice. Again the focus of the workshop was the very imminent introduction of Personal Independence Payments (PIP) – the new … Continue reading

Support at the Charing Cross Hospital clinic

Yesterday, I sat in on Dr Wojtek Rakowicz’s neuromuscular follow up clinic at the Charing Cross Hospital, Hammersmith. Visiting clinics is a really important and enjoyable part of my work at the Muscular Dystrophy Campaign. Not everyone has heard about our advocacy support service at the charity and so having a representative from the advocacy … Continue reading