King’s Fund report highlights concerns raised by the Muscular Dystrophy Campaign

A recently published report by The King’s Fund raises significant concerns about many GPs’ gaps in knowledge for patients with long-term conditions like muscle disease. The report calls for more preventative care and earlier diagnosis and treatment to avoid unplanned emergency admissions; all of which we have been strongly recommending to improve the care of people with neuromuscular conditions.

The report also highlights the need for GPs to draw on specialist support during both the planning and delivery of care. This is particularly important for neuromuscular conditions as GPs may only see one or two patients with a particular condition throughout their entire career. They argue that it is vital for GP practices to work closely with hospital and community services to co-ordinate care, especially for patients with long-term conditions such as muscle disease. This reinforces just how vital Neuromuscular Care Advisors are to achieving high quality care for patients with neuromuscular conditions.

Robert Meadowcroft, Chief Executive of the Muscular Dystrophy Campaign said:

“We welcome this report from The King’s Fund as it underlines many of the concerns we have been expressing about the gaps in care for people with neuromuscular conditions. We would welcome the opportunity to discuss these issues further and urge the Royal College of GPs to meet with us to look at how we can work together to improve things for patients with muscle disease. “

For more information about this report, please contact us.

020 7803 2865
campaigns@muscular-dystrophy.org

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